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Resources: Palliative Care - Coalition for Supportive Care of Kidney Patients
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Resources

For Patients & Families

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Palliative Care

If you are reading this, you may be a kidney patient or a family member affected by kidney disease, and treatment is either under way or being discussed. An important part of ongoing discussions with your care providers is a frank talk about the benefits and burdens of treatment options and what is most important to you on this journey.

Whether you have chosen dialysis or not, you certainly want to be comfortable and supported. Palliative care, centered on your wishes, can be an important addition to the good care you are already getting. Skilled specialists in this new field can address your need for control of symptoms such as pain, fatigue, nausea and vomiting, a decline in mental functioning, and depression. Palliative care doctors, nurses and social workers can work with your nephrologist or dialysis provider to ensure your well-being, and that of your family members. Ask your care provider if a palliative care consultation can be added to your plan of care.

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Additional Resources

The National Hospice and Palliative Care Organization offers several resources to better understand palliative care. The first is frequently asked questions and another is palliative care or hospice, the right service at the right time for seriously ill individuals.
National Kidney Foundation has addressed palliative care and how it helps patients with kidney disease.
Getpalliativecare.orgis a website providing clear, comprehensive palliative care information for people living with a serious illness. Key features of the site include a Palliative Care Provider Directory, a definition of palliative care, and detailed descriptions of what palliative care does and how to get it. It also provides an interactive quiz to assist you in deciding whether palliative care might be right for you or a loved one. The site is provided by the Center to Advance Palliative Care (CAPC).
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