The Kidney End-of-Life Coalition has changed its name to the Coalition for Supportive Care of Kidney Patients.
There are over 320,000 people receiving dialysis therapy in the United States and over 45% are over the age of 60. Despite many dialysis patients having significant co-morbid conditions that affect their care, they have a high quality of life and can be expected to enjoy extra years of life afforded by dialysis. However, this is not true for all patients. About 20% of patients withdraw from dialysis prior to death, and many die from heart disease, infections, and other causes while continuing dialysis. For these patients, end-of-life care is an important part of their treatment plan.
This website is dedicated to those patients and to all the caring staff in hospitals, dialysis units, and hospice organizations who are committed to helping patients with death, the final stage of growth.1
This website was developed by the Kidney End-of-Life Coalition to be a dynamic site with links to many other websites and resources addressing end-of-life concerns. The Coalition for Supportive Care of Kidney Patients intends for this website to serve as an expanded resource for patients and families from the time of diagnosis through to end-of-life care, focusing on providing patients with relief from the symptoms, pain, and stress of a serious illness.
Contact us with questions; your feedback is always appreciated.
1. Kübler-Ross E. DEATH, The Final Stage of Growth. Touchstone; 1997.
The Mid-Atlantic Renal Coalition was awarded
the American Association of Kidney Patients'
2007 Dominick Gentile, MD, Memorial Award
in recognition of its Kidney End-of-Life Coalition.
The award is given annually to an ESRD Network in recognition of
its maintenance of a developed program that significantly benefits patients.