Additional Resources

  • EDREN Info’s Witholding & Withdrawing from Dialysis  provides a summary of questions about why some whose kidneys have almost completely failed, choose not to have dialysis.  Expanded/more detailed information also available.
  • Growth House has a large collection of resources about serious illness and end-of-life care.
  • National Alliance for Caregiving is a non-profit coalition to support family caregivers and the professionals who serve them.
  • National Family Caregivers Association offers services, support, and education to improve family caregivers’ quality of life. Membership is free.
  • offers a variety of resources on improving end-of-life care, such as caregiver guides and research on chronic illness.
  • Dying Well is an excellent book written by Ira Byock, MD; it is also a website that provides resources for persons facing serious illness and their families. Dr. Byock is a palliative care expert.
  • Pathways Project Change Packet
    The Pathways Project Change Packet contains evidence-based recommendations designed to bring about improvements in the supportive care delivery for patients with kidney disease.