March 20, 2017
Coalition releases advance care planning tools for CKD patients and providers as part of MY WAY Project.
November 21, 2016
Unable to join us for the Coalition luncheon at ASN Kidney Week? That's okay--you can view the slides here and get involved!
November 14, 2016
Coalition receives grant from the Gordon and Betty Moore Foundation to develop evidence-based best practices for delivering patient-centered palliative care to CKD patients. Read about the Pathways Project.
November 7, 2016
Coalition updates Treating Pain in Late CKD & Dialysis Patients Clinical Algorithm & Preferred Medications
April 29, 2016
Atul Gawande, MD, MPH, Keynote Speaker at the 2016 National Kidney Foundation's Spring Clinical Meetings discusses palliative care. Click here to read article.
April 26, 2016
Coalition's article Providing Supportive Care to Patients with Kidney Disease is featured cover article featured in May 2016 edition of Nephrology News & Issues. Click here to read the article.
January 13, 2016
Coalition for Supportive Care of Kidney Patients has hired a director and has received funding for two research projects. Click here for more information.
November 24, 2015
Coalition for Supportive Care of Kidney Patients (CSCKP) releases a new summary of best practices for managing the symptoms of end stage renal disease
This short guide provides links to a wealth of resources to help kidney professionals manage the physical, psychosocial, and spiritual suffering of end stage kidney disease.
August 11, 2015
Coalition for Supportive Care of Kidney Patients (CSCKP) Webinar: Palliative Care and the Elderly CKD Patient
Jennifer S. Scherer, M.D., Assistant Professor, Division of Palliative Care and Division of Nephrology, NYU School of Medicine, and Holly Koncicki, MD, MS, Assistant Professor, Hofstra North Shore-LIJ School of Medicine, explored the benefits of integrating palliative care into standard nephrology care for elderly patients with ESRD. Webinar sponsored by Mid-Atlantic Renal Coalition (MARC) on behalf of CSCKP. Click here to listen to the webinar recording.
January 26, 2015 - Coalition for Supportive Care of Kidney Patients Webinar: Building on the Institute of Medicine's Dying in America Report; Coalition Member Update and Engagement
Dr. Diane Meier discussed the IOM's report recommedations and how Coalition members can build upon the momentum of the IOM report to accelerate culture change in kidney care. Dr. Alvin Moss, and Dr. Dale Lupu discussed recent activities and accomplishments of the Coalition for Supportive Care of Kidney Patients and describe opportunities for members to engage in a project. This webinar was FREE and open to anyone who is interested in participating. **This webinar was not recorded; click here to access the presentation slides.**
July 30, 2014 - Article by CSKCP leaders Ann O’Hare and colleagues published as part of CJASN Public Policy Series envisions a more patient-centered approach to kidney care.
July 29, 2014 - CSCKP joined with many others to point out that rules issued by CMS in March were hurting hospice patient access to prescription medicines. CMS listened and issued revisions which make it easier for hospice patients to continue to have prescriptions unrelated to their hospice care reimbursed by Medicare Part D. Rather than requiring prior authorization for ALL prescriptions for hospice patients, the revised guidance expects Part D sponsors to use hospice prior authorization only on four categories of drugs identified as nearly always covered under the hospice benefit: analgesics, antinauseants, laxatives, and antianxiety drugs. Hospices are required to cover all drugs related to the terminal illness as part of the Medicare Hospice Benefit.
June 30, 2014 - Coalition Chair Alvin Moss, MD, submits comments to CMS on the Proposed Rule affecting the Medicare Hospice Benefit for ESRD patients.
June 20, 2014 - TAKE ACTION NOW: Comments Sought by July 1, 2014. Tell CMS Not To Shut The Door to Hospice: CMS Hospice Proposed Rule Makes Access to Hospice Care Even Harder for Kidney Patients
The Centers for Medicare and Medicaid Services (CMS) has proposed new definitions and rules for “terminal illness” and “related conditions” under the Medicare Hospice Benefit. Several proposed provisions have the potential to adversely impact access to hospice care by patients with kidney disease. The gist of the new definitions seems likely to curtail or eliminate the current practice of allowing concurrent hospice and dialysis for dialysis patients with a non-kidney-related terminal diagnosis (such as cancer). Please submit your comments to CMS by July 1.
Click here for suggested bullet points to include in your comments, more background on the proposed rule, and further information about hospice care for dialysis patients.
April 14, 2014 - Renal Physicians Association (RPA) releases free iPad app to assist with shared decision-making and pain and symptom management. Click here to read the press release.
August 23, 2013 - The Coalition for Supportive Care of Kidney Patients provides input to the Institute of Medicine's Committee on Transforming End-of-Life Care. Click here for more information.
March 28, 2013 - Kidney End-of-Life Coalition Becomes the Coalition for Supportive Care of Kidney Patients. Click here to read the full press release.